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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 6 hours ago | Replies (6011)Comment receiving replies
I know that men are usually very upset by hair loss and I understand. I am a 62 year old woman and my hair is falling out too.
In 2019, when I was first diagnosed with neuropathy, all my body hair had already fallen out. I was not prepared for the hair on my head to fall out. I am embarrassed and distressed and depressed over this. I understand and sympathize with all of you.
People keep telling me to use the hair and nail vitamins and I keep telling them the hair loss is due to my neuropathy. Almost no one I know understands neuropathy, and most people have even heard of it. When I was diagnosed with fibromyalgia everyone knew at least something about it and when I was diagnosed with rheumatoid arthritis a large number of people I knew had it also. But I can't seem to find anyone that understands neuropathy except my doctors. I looked for a local support group and there aren't any.
Replies to "I know that men are usually very upset by hair loss and I understand. I am..."
Well, we may not be local, but you have hit the “understanding neuropathy” jackpot of support and shared information here.
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"But I can't seem to find anyone that understands neuropathy … "
I sympathize! Not a day goes by I don't feel a twinge of frustration with my friends who may try but can't seem to fully understand what I'm dealing with. Because my PN is largely invisible (except to me!), my friends are disappointed when I don't show instant enthusiasm for activities I once relished without reservation. I'm acutely aware of the toll PN has taken on my life. I thought of this only last evening when I excused myself from the dinner table (as you might guess: a "call of nature"); had any of my friends noticed me as I exited the room, chances are they would not have noticed anything amiss; what they wouldn't have seen was the tentative, furrowed-brow extra-care I was taking just so I wouldn't lose my balance and go Splat! on the dining room floor.