← Return to Support Group for Those of Us Living With Mild Dementia

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@johnnoregon

Thanks, Colleen. I'm open-book about this with friends and family. This is an illness and I'm not embarrassed about it. This will sound strange, but I embrace it as a new journey in my life. I had a stroke in 2020 and treat that the same way. When I talk to someone about my NCD, I ask for a few minutes to give a short explanation: "Here's the dx, it's ok, I'm doing fine, no need for daily help. It's not major, it's not ALZ, just a few quirks you may see from me on occasion. If you need me for something, please text so I have a record to make sure I follow through." My immediate issues are hard-to-access memory, both short and long. Yesterday's stuff is fading as I write this. The PsyD diagnosed me told me to advise people that I needed things written down when I was asked for something. As a 67M, I'm retired and active (I have a small farm in Oregon) For me right now, a text on my phone is working. I personally feel more comfortable laying out what I'm facing so I can better manage expectations. Support has been outstanding. Is this kinda what you're asking?

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Replies to "Thanks, Colleen. I'm open-book about this with friends and family. This is an illness and I'm..."

Great advice—I simply cannot remember. Ex: I thought I’d have instructions on patient portal, but resident posted a few days later. I could have taken pain killer after procedure. For now on, I will ask for handwritten instructions or time to write & have md check. Many thanks, and good luck