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Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: 2 days ago | Replies (100)

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@juju67

Good news, bad news from my oncologist. The lymph nodes that were removed showed cancer but only at the microscopic level. All the margins tested negative so by doing a radical vulvectomy they removed all the cancer cells in/on the vulva. Due to these findings, I will not have to have radiation at this time. Yay! However, it could reappear in the future. The doctor said I will have to be monitored every three months going forward.

The healing is going well. Still having some pain/discomfort when sitting for a while. Still am not able to lift over 5 pounds or do any strenuous activities. Trying to get my energy level back up to where it was. Finding I need a nap every day now.

I have an appointment in December for a follow up with the oncologist.

Hope you ladies are doing well.

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Replies to "Good news, bad news from my oncologist. The lymph nodes that were removed showed cancer but..."

So glad to hear the positive outcome. I hope you have many years to enjoy life before you need further treatment. I believe the 3 month monitoring is the norm & will help you to "catch" any further developments while you still can control the progress of Paget's.
As I have reported, I have had 6 surgeries, and as miserable as it is to have the surgery, I have survived 10 years thanks to this early detection & prevention.
Good luck