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Pancreatic cancer relapse

Pancreatic Cancer | Last Active: Nov 1, 2023 | Replies (69)

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@lilliejane2

When I was first treated for the original mass, I was treated with
Gemcitabine and abraxane. I'm not sure how long before all the side
effects subsided after treatment ended, but it didnt seem too long. The
lingering effect may have been fatigue. I exercised all during chemo,
walking and weight training, which I believe diminished the time of
recovery.
Now, on a 5FU treatment for the recurrence, I am seeing that this treatment
is much harsher. Nausea and fatigue last about a week, where the original
treatment had side effects for only a few days.
That's great that treatment has ended for your husband! Just remember,
it's going to get better. Best thoughts for a speedy recovery and
vibrant energy returning.

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Replies to "When I was first treated for the original mass, I was treated with Gemcitabine and abraxane...."

I’m so happy to hear that you are on Folfirinox. My oncologist tells me it’s the only that works. I had surgery ( distal with many complications oct 2022), then chemo for 6 mos. It’s rough, but well worth it. I’m 65 years old and am told I’m cancer free now. I walked every other week while I was on chemo and took my laptop to the infusion center and tutored my daughter in calculus while I was on infusion. I also prayed a lot! I’m living my best life and back to work part time and walking every other day. I’m praying for you and your recovery. I had 75% of my pancreas removed with clear margins. Get into clinical trials if you can.

Wishing you all the best with your new treatment. Thank you for sharing your story. Be strong and take things one day at a time. It is a very hard treatment, but worth the rewards. God bless.

I found that Folfirinox was cumulative -- my side effects intensified over time, and they persisted for a greater number of days. Don't be discouraged -- be prepared. 🙂

Stay hydrated to help wash out the chemicals, and if you're wearing a pump with 5FU for Days 1, 2, and part of 3, perhaps ask the nurse for a bag of IV fluid when you get your pump de-accessed, to boost hydration.