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@molly48823

You’re right and many doctors don’t know where to start bec they have no idea what they’re dealing with. In my case, the primary symptom was a horrible, hacking cough that went on for 6 months, masking the impending kidney failure. The pulmonologist ran every test he knew of and even repeated some before throwing his hands up. My primary said I know you’re sick but I don’t know even where to refer you. There are some broad blood tests that help doctors narrow down the search for the problem. They just need to know which tests to ask for. It’s a problem.

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Replies to "You’re right and many doctors don’t know where to start bec they have no idea what..."

wow. it is really hard to diagnose it seems. Other than the ANCA blood tests, and maybe the inflammatory ones (CRP and ESR) are there other blood tests that help determine? It seems awful that one has to resort to organ biopsies, etc.. to diagnose.