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How did you choose between proton or photon radiation?
Got really different feedback from different urologist and radiation/oncologist. The Decipher test did not match biopsy. A lot of different opinions of pros and cons of proton verus photon.
I am in my 3rd week now of proton therapy. M-F for 6 weeks. So far no side affects. I am an avid exerciser (was doing Sprint Triathlons prior to prostrate cancer). I could no longer train or do triathlons with Space/Oar so added walks to my swimming and water aerobics.
I am not sure if exercise helps but seems to me with me. The only issue I have is weight. Can't gain or lose more than 5 lbs due to measurements. So my weight went up prior to treatments (stress) and don't like it but did not let it stop me from exercising which I think really helps you get through the treatments both physically and mentally.
Would like to hear those who chose proton over photon and your reasons why. Mine was information I gathered was proton limited the amount of radiation to other tissues and organs more than photon. A lot of debate but not much research beyond 5 year studies.
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I think it is a coin flip. Not too much difference either way in my opinion.
Pbmurph:
Very curious why double hip replacement dq'd you from proton therapy.
I have 2 replaced hips, and there was some difficulty in mapping my pelvic area/pelvis lymph nodes for salvage radiation (std IMRT, not proton) post RP. Needed a 2d simulation with a balloon for a successful pathway.
Re: Orgovyx - I had 4 mos together with my salvage radiation. The side effects were impactful, but not overwhelming. Guys respond differently, so best wishes for minor SEs.
Best wishes for a successful treatment.
MichaelCharles,
It was my first choice for treatment but I was informed that the Proton Therapy goes through the sides through the hips area. The titanium would block or disperse the radiation.
I confirmed this with Mayo, UF Cancer, Johns Hopkins and Miami Baptist. They all have proton but said they wouldn't do it.
Yes the proton goes sides on each side. You actually get a tan mark on each side about 3 weeks in.
The new photon radiation treatments can focus on avoiding areas like this but as with all photon radiation it will pass through body not end at prostrate.
Pbmurh:
Very interesting.
I received my IMRT salvage radiation at Johns Hopkins, Baltimore.
A friend received his Salvage Radiation at JH's Sibling Memorial Hospital facility in Washington DC, which has proton. He actually is in a clinical trial there, but it's related to the hormone cocktail, not the type of radiation, I believe, and his clinical trial radiation at Sibley is proton.
So your post attracted my attention.
Best wishes for successful treatment.