1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Dawn, Alumni Mentor | @dawn_giacabazi | Aug 10, 2016
In reply to @dawn_giacabazi "Hello @lauriedr I can feel your frustration through your note. I have a little experience in..." + (show)
@dawn_giacabazi

Hello @lauriedr
I can feel your frustration through your note. I have a little experience in life long issues. I also have seen many of patients with similar frustrations however I am no expert. I have found over the past couple years that sometimes it is in the best interested of the patient to simply wean them off everything and start over again. I know that is very difficult to hear but I wonder if this is what your doctors are thinking. Our bodies become so use to the drugs and treatments that they no longer effective. (Just like a patient losing weight, they hit a plateau and they need to change it up to kick start it again.)
It might be beneficial to discuss with your physicians PGx Testing. This would help them find the best most effective medications to treat your symptoms without going through all the different trial and error periods. Here is a link to Mayo Clinics PGx profiling. http://mayoresearch.mayo.edu/center-for-individualized-medicine/pgx-profile-service.asp

Please know you are in my thoughts and prayers.
Thanks
Dawn

Jump to this post

Hello @ladyjane85!!

We have done the testing on about 70 of our patients and only 2 had to pay out of pocket.

As long as the patient is on 2 or more medications treating 1 or more diagnosis then medicare has approved for the pharmacogenetic testing (cheek swab).

Mayo Clinic is much more in depth monecular profiling. They will work with you and your insurance providers.

REPLY
hosta, Eve | @hosta | Aug 10, 2016
In reply to @ocangela "I'm Angela and I've just joined in. Had a car accident last Nov. has a fracture..." + (show)
@ocangela

I'm Angela and I've just joined in. Had a car accident last Nov. has a fracture of L1 which the Drs let heal. That seems to have happened but I am let with conic pain in my middle back. Nothing short of Norco seems to help. I hate taking this every day. LOoking for other ways to manage

Jump to this post

Yes I saw a pain management doctor. I had the injections and the RFA. Didn't help!

REPLY
medic7054 | @medic7054 | Aug 10, 2016

Hi, My name is Rich Carlson. I have Peripheral Neuropathy with about a 10+ year history. I currently take Lyrica 300 mg qid, Cymbalta 30 mg daily, OTC Tylenol and Advil qid. My primary physician has referred me to a Medical Marijuana center. Has anyone here ever tried this? If so, did it help. My pain has incapacitated me to point where I would try most anything that works to relieve my pain.

REPLY
1 reply
medic7054 | @medic7054 | Aug 10, 2016
In reply to @mojoearle "Hello group! I'm almost 34 years old and suffer from Chronic pain. I have had 16..." + (show)
@mojoearle

Hello group! I'm almost 34 years old and suffer from Chronic pain. I have had 16 surgeries and have been a patient at the Mayo Clinic in Scottsdale for almost 3 years now but I live in Idaho and have to travel down to Arizona every three months for a month or so of treatment and testing and Doctor appointments and just even thinking of packing and flying down makes me hurt even more. But in all seriousness I do struggle with the long trip down to Scottsdale and then making it to all of my appointments and giving hundreds of vials of blood and doing all the test and my existence is just painful all the time 24/7! I have a pain Doctor in Boise but they make everyone at their clinic only take extremely low doses of pain medication a day and DONT GET ME WRONG I WOULD KILL TO NEVER HAVE TO EVEN LOOK AT A NARCOTIC PAINKILLER AGAIN BUT I DONT EVEN GET TO A 5-6 ON THE PAIN SCALE!

Jump to this post

mayo in Rochester has a Pain Rehab class that helped me get off Opioids and manage my pain. I would strongly recommend it for anyone with chronic pain.

REPLY
BunnyLove | @arambulab | Aug 10, 2016

Hello I am BunnyLove. I am so thankful that I finally found this group. I am in so much need of some comfort right now. Been suffering for three years now and still no answers from 5 doctors. Mentally it has taken a ginormous toll!!! So thank you for being here!

REPLY
ladyjane85 | @ladyjane85 | Aug 10, 2016
In reply to @ocangela "I'm Angela and I've just joined in. Had a car accident last Nov. has a fracture..." + (show)
@ocangela

I'm Angela and I've just joined in. Had a car accident last Nov. has a fracture of L1 which the Drs let heal. That seems to have happened but I am let with conic pain in my middle back. Nothing short of Norco seems to help. I hate taking this every day. LOoking for other ways to manage

Jump to this post

@hosta Bunch of baloney that the surgery should have been done immed.<br> My last fracture at T6 level was very painful - did not see surgeon until<br>5th week, but I said no to surgery even though he said he could do it then.<br> I figured by then I would deal with it. Your dr may have done something<br>wrong, in my estimation. Maybe it had not healed the best, but we continue<br>to have these fractures. agree when mine at T6 level came on it goes way<br>around to the chest. I deal with 8,9, 10 pain all the time. Had my<br>stimulator removed also - not worth a darn. ladyjane86<br><br>

REPLY
granny998 | @granny998 | Aug 10, 2016
In reply to @frank1 "Hi, my name is Warren. I have dry eye disease, whose cause has yet to be..." + (show)
@frank1

Hi, my name is Warren. I have dry eye disease, whose cause has yet to be determined (after 6 years). I don't have pain in the sense of "hurt", but I do have it in the sense of irritation that is constant any time I have my eyes open. For that reason it seems I am more similar and sympathetic to people who have chronic pain than other types of disorders. People do not understand how it feels to constantly have sand in your eyes, or large foreign objects, and burning, and when one looks--there's nothing there! When I leave home or go outdoors, I find that wearing a snug-fitting pair of high-school chemistry lab goggles help keep my eyes from drying out so fast helps, but it is humiliating, and you should hear the comments some people make! I've said enough for now, but I am so glad to be part of this group. I hope I can help some of you. Thanks. Warren

Jump to this post

I also have dry eyes but am not hurting like you are. Do you use Restatis? Sometimes at night I use an eye lubricant to relieve the burning. You probably are doing all this already.

REPLY
granny998 | @granny998 | Aug 10, 2016
In reply to @alysebrunella "Hello and welcome to all of our new members, @sunshineme, @janicedean, @granny988, @hosta, @hemraj, and @lauriedr!..." + (show)
@alysebrunella

Hello and welcome to all of our new members, @sunshineme, @janicedean, @granny988, @hosta, @hemraj, and @lauriedr! We're thrilled to have you all as part of the Chronic Pain group. And appreciate you sharing a little bit about yourself in this thread. I'd also like to introduce you all to existing members of the Chronic Pain group, @leh09, @19lin, @suebreen54, @ladyjane85, @briansr, @salena54, @sharonmay7, and @lolomarie.

Jump to this post

After reading some of the posts, my pain doesn't seem to be as bad. It comes and goes depending on what I do. At times my back seems to be breaking but if I sit and "ice", I can go again for a while. I'm having pain in my buttocks and left leg that causes problems sleeping, walking, standing or sitting. My heart breaks for those who have been suffering for so long with no good quality of life. I will probably have to have back surgery and am interested in anyone who has had this type of surgery.

REPLY
ladyjane85 | @ladyjane85 | Aug 10, 2016
In reply to @frank1 "Hi, my name is Warren. I have dry eye disease, whose cause has yet to be..." + (show)
@frank1

Hi, my name is Warren. I have dry eye disease, whose cause has yet to be determined (after 6 years). I don't have pain in the sense of "hurt", but I do have it in the sense of irritation that is constant any time I have my eyes open. For that reason it seems I am more similar and sympathetic to people who have chronic pain than other types of disorders. People do not understand how it feels to constantly have sand in your eyes, or large foreign objects, and burning, and when one looks--there's nothing there! When I leave home or go outdoors, I find that wearing a snug-fitting pair of high-school chemistry lab goggles help keep my eyes from drying out so fast helps, but it is humiliating, and you should hear the comments some people make! I've said enough for now, but I am so glad to be part of this group. I hope I can help some of you. Thanks. Warren

Jump to this post

Whoever you are talking to about dry eyes, I just had tubes put in mine<br>that last 6 months relieving the situation. these tubes are put in near the<br>tear ducts (no pain at all) and they squeeze the ducts so one gets the<br>natural lubrication. they are great, and medicare pays for it by your eye<br>dr. ladyjane86<br><br>

REPLY
ladyjane85 | @ladyjane85 | Aug 10, 2016
In reply to @alysebrunella "Hello and welcome to all of our new members, @sunshineme, @janicedean, @granny988, @hosta, @hemraj, and @lauriedr!..." + (show)
@alysebrunella

Hello and welcome to all of our new members, @sunshineme, @janicedean, @granny988, @hosta, @hemraj, and @lauriedr! We're thrilled to have you all as part of the Chronic Pain group. And appreciate you sharing a little bit about yourself in this thread. I'd also like to introduce you all to existing members of the Chronic Pain group, @leh09, @19lin, @suebreen54, @ladyjane85, @briansr, @salena54, @sharonmay7, and @lolomarie.

Jump to this post

I have had every type of surgery on my back. I presume the pain is sciatica<br>- I have everything wrong with my back and still have severe pain for over<br>25 years. Depends, everyone is different. ladyjane86<br><br>

REPLY
View MoreView Less
Please sign in or register to post a reply.