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@melinda561

Yes I do have a specialist at Mayo whom I’ve been seeing since 2020. Prior I had a pulmonologist who treated me for COPD and diagnosed me with bronchiectasis in 2018. He never recommended sputum samples and or treatments. As my lung condition worsened I had an appointment with National Jewish Heath but canceled due to Covid. I then found a specialist at Mayo. I’ve had to learn about my disease and available treatments from different sites. I agree that what is effective for one person may not be for another. I too have had to take steroids on occasion and acknowledge that sometimes they are necessary. The “Lung matters “site that I have been following are evidence based treatment recommendations. For example, use of pall filter for showering, boiling drinking water and boiling reusable equipment after each use for minimum of 10minutes and adding additional minutes for x amount of feet above sea level. They have many other recommendations/guidelines . I do agree that treatment plans should be tailored to individual needs as many of us have additional illnesses that alter our plan of care. I looked at these guidelines as additional safeguards if one chose to use them. From what I’ve read, the guidelines were evidence based outcomes from National Jewish Health, Mayo Cliniic and a few other sites.. I thank you for your experience and views. After rereading my post, I realized “must “ was not appropriate as recommendations or guidelines are individual choices. I thank you for input and objective information.

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Replies to "Yes I do have a specialist at Mayo whom I’ve been seeing since 2020. Prior I..."

Hi there. May I ask which Mayo Clinic location you are speaking of ?

Dear Melinda,
I have just been diagnosed with MAC and have been advised by my pulmonologist to start the antibiotic protocol. But neither he or his team mentioned boiling drinking water or using shower filters. How do you navigate that?
I’ve been told that MAC is not infectious but then I read that equipment must be sterilized as to avoid re- exposure to the bacteria; that your toothbrush should not be kept in the same holder as your family’s etc. etc