← Return to New here: Looking for others who have NSCLC and information

Discussion
Comment receiving replies
@aprilradek

Hi dragonspark,

It is scary and overwhelming.
I am also stage 3a, I had a lobectomy on Sept 29th and I am recovering. How is your recovery going? I had 10 lymph nodes removed and one had cancer. I am also waiting to talk with my oncologist to see what the next phase of treatment will be. Apparently, PET scans are not 100% accurate. My cancer-positive lymph node did not light up on my scan. And the 3 that did light up all turned out to be negative for cancer. I don't think your cancer spread that fast, I have been told it is slow-growing.
When are you meeting with your oncologist?
april

Jump to this post


Replies to "Hi dragonspark, It is scary and overwhelming. I am also stage 3a, I had a lobectomy..."

I don’t have an appt with oncology yet. I still have my chest tube in and hopefully get it out tomorrow. I had a fairly large air leak, so they sent me home with the tube for a few days. My surgeon said once that’s out he will drop the orders for a brain MRI and a consult with oncology. So I don’t know yet when I meet with them. I’m hoping soon for both appts.

April
How is it going with you? I start radiation (SBRT) for a nodule in my right lung that before my stage changed, they planned to just watch. I’m actually better with that plan versus waiting to see if it becomes cancer and going through surgery all over again.

Then I meet with medical oncology again to finalize treatment for the left lung. We are waiting for genomic testing but in my research, regardless of that testing, adjuvant chemo makes sense. I plan to ask about that. They mentioned chemo initially to me at my first oncology appointment but also mentioned maybe not depending on my test results.

Have you finalized your treatment plan?