@moconnor166 Hi, Good Afternoon
I am very sorry you have been going through that.
I also had some twitches, especially at night, waking me and my husband up many times in the middle of the night. The doctor said it was a side effect of the medication (AED and anti-depressive). Now that I am off those medications, thankfully, being treated with a more natural approach (medical cannabis, diet, yoga, etc), those twitches are gone. Have a look at the side effects of the medications you are taking. Perhaps those twitches come from them?
After going through very difficult moments with medications in my epilepsy journey, I would also schedule an appointment with a doctor of integrative medicine, which combines traditional medicine and ancient medicines (Ayurveda, Chinese) and homeopathy, if I were in such a situation.
All my best to you!
Chris (or Santosha)