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New here: Looking for others who have NSCLC and information
Lung Cancer | Last Active: Nov 1, 2023 | Replies (111)Comment receiving replies
Hello. I’m new here. I found out I have lung cancer by accident. I’m not sick or feeling bad. I had a lobectomy last week and am home recovering from that. I saw in my patient portal that one of the 8 lymph nodes tested positive for cancer. I’m devastated. I surgeon restaged me from Stage 1b to Stage 3a. So I went from “surgery is curative” to something else. I haven’t met with the oncologist yet but I’m worried. I also have an autoimmune disease (Lupus) and I think that will limit my options. This is all so overwhelming and I’m scared now that it’s spread. My PET Scan from a couple of weeks ago didn’t show any lymph nodes being affected and my bronchoscopy didn’t either, which makes me fear it spread in that short time and may be spreading as I type this. Just needed to get that out of me. They did get all of the tumor so at least there is that.
Replies to "Hello. I’m new here. I found out I have lung cancer by accident. I’m not sick..."
DragonsPark,
Have they classified your cancer type? I became aware of mine in a routine chest ct and since it was tiny and not very impressive we just watched it every year for four years. This year it grew a bit though was still less than 1.5cm. But surgery to remove it 4.5 mos ago revealed it was Adenocarcinoma 1a. So they took my left lower lobe and a bunch of lymph nodes which tested negative. Clearly my cancer type grew slowly. That doesn’t mean yours would but if the hot node in question was only revealed to you in patient portal, I would definitely call my doc for clarification.
Hi @dragonspark, I'm so sorry that you had to come here, but I'm glad that you did. Please know that everything that you are feeling is normal, it's such a scary time. This is a good/safe place to vent those feelings, because we've all felt them. If you can, try to focus on what you know now, and not the long list of what might be. Your Lupus may impact treatment, but it may not, depending on what's driving the cancer. Like the others, I'm wondering when is your appointment with the oncologist?
Hey, 3a is curative using Ablation + Immunotherapy + Surgery at the Mayo Clinic in Rochester MN. I have been Cancer Free for 3 weeks now. My stage 3a is now stage 0...
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Hi dragonspark,
It is scary and overwhelming.
I am also stage 3a, I had a lobectomy on Sept 29th and I am recovering. How is your recovery going? I had 10 lymph nodes removed and one had cancer. I am also waiting to talk with my oncologist to see what the next phase of treatment will be. Apparently, PET scans are not 100% accurate. My cancer-positive lymph node did not light up on my scan. And the 3 that did light up all turned out to be negative for cancer. I don't think your cancer spread that fast, I have been told it is slow-growing.
When are you meeting with your oncologist?
april