← Return to Kevzara (sarilumab) to treat PMR

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Kevzara (sarilumab) to treat PMR

Polymyalgia Rheumatica (PMR) | Last Active: Apr 4 7:55pm | Replies (156)

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@hfoster

Update on my original post. I stuck with Pred and am almost finished! Down to just. 5mg. I do have some discomfort in hips and shoulders but OTC pain meds work ok. All labs normal.

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Replies to "Update on my original post. I stuck with Pred and am almost finished! Down to just...."

Why did you decide to stay on prednisone? Why can't you taper off prednisone?

If you started prednisone in June 2022 when you were diagnosed with PMR then it seems like you are making good progress. However, if you have recurring symptoms and/or have a relapse that requires you to increase your prednisone dose maybe you should reconsider Kevzara.

There is no guarantee that Kevzara will work but you won't know unless you try it to see if it works or not.

Update on the update. I am Pred free since mid November. 18months total on Pred and 2 years, 3 months since onset of PMR symptoms. Labs last month were normal. Some pain remains in shoulders and sometimes have difficulty rising from sitting position after sitting for a long time. Taking Aleve a couple of times/week, which helps a little.