← Return to My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

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@tjakusz

Hello, I am new to Mayo and transferred from City of Hope (long story). I am preparing for BMT due to MDS that had progressed to AML, but AML is in remission after Azacitadine and Veneclexta. Was wondering how those who have had the whole transplant process here outpatient handled it. Everywhere else the first 30 days are inpatient. I believe Mayo is the only one to do it outpatient. I know you need to be within 15 min of hospital and come every day but still concerned how it went. Anybody have experience they can share please? Thanks so much!!

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Replies to "Hello, I am new to Mayo and transferred from City of Hope (long story). I am..."

Hi @tjakusz Welcome to Connect! You came to the right place for information and, for your BMT. I had my BMT at Mayo-Rochester and can’t imagine a better place for treatment. I’m 4 yrs 3 mo post transplant and feeling amazing. In fact, I just got back from a followup appointment and everything is stellar.

I’m not familiar with any other places besides Mayo who do BMT as outpatient. But from hearing other stories and compare them with my own, the model Mayo has set up is excellent. Having limited time in a hospital allows for patients to recover faster in a ‘home’ environment. Your exposure to infections is less, you can get up to scrounge for food in your own refrigerator, you walk more, have privacy, etc..
You will still report to the clinic daily for blood work. Just because you’re out patient doesn’t mean you’re left on your own. You will need a caregiver with you 24/7. If there is the slightest issue you will be re-admitted to the hospital. There’s no question about how seriously they take your condition!

My husband and I set up housekeeping at the Marriott Residence in. We got a 2 bedroom, 2 bath suite so I had my own room. It’s connected via the Subway system (underground walkway) to the clinic. It was an easy walk or wheel chair ride to the clinic daily. (You can use the wheelchairs from Mayo to take back to your hotel)

I have lists of things to consider for what to bring for the 3-4 months you’ll be living away from home, precautions for staying healthy, etc.. I’ll find those posts and link you to them.

I know @edb1123 also had her transplant at Mayo Rochester so she may have things to add as well. I think we’ve both posted earlier in this discussion so if you’re interested in doing some reading a lot of the information is there.

Am I right in that you’re going to Rochester or are you at another campus?
Do you have any specific questions?