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Anyone else have strange neurological symptoms with PMR?
Polymyalgia Rheumatica (PMR) | Last Active: Nov 11, 2023 | Replies (21)Comment receiving replies
Welcome @marg47, It's great to see that you have already connected with @sashakay and @jabrown0407. It can be comforting to know that you are not alone. Giant cell arteritis (GCA) can be serious. Have you discussed your symptoms with your doctor or rheumatologist?
Replies to "Welcome @marg47, It's great to see that you have already connected with @sashakay and @jabrown0407. It..."
Yes, biopsy done and now on high doses of prednisolone. Thank you for responding.
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My eye doctor told me that GCA is one of the few things considered a real eye emergency and that hospital ERs are not equipped to diagnose it - doctors are not well trained to consider it and ER's do not have eye equipment. My ophthalmologist gave me a 24-hour number to call if I even thought I was having symptoms. It cannot wait until morning - you can have permanent blindness from failure to act. As far as I am concerned anyone with PMR should talk with their eye doctor on how to screen for it and manage symptoms. It is rare but can be very serious.