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Interested in hearing people's experiences with PRRT

Neuroendocrine Tumors (NETs) | Last Active: Oct 16, 2023 | Replies (138)
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@kwan

@phylissden
Good to know PRRT has stabilized your condition.
My son had pNet 5cm on body of pancreas. It was irresectable because of blood vessel wrap around the tumor. Spine lesion was seen and lymph node affected. He took his 2nd treatment of PRRT last month. Recent blood work shows drop in platelet from 130 to 75 and significant uptake of radioactivity in the spine lesion. Doctor suggested there could be internal bleeding and mets to spine but will wait for the scheduling of pet scan dotatate on further action.
Is there any remedy for the drop in platelet ?

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Replies to "@phylissden Good to know PRRT has stabilized your condition. My son had pNet 5cm on body..."
phyllisden | @phyllisden | Oct 12, 2023

@kwan, I’m so sorry to hear about your son’s situation. Hoping they can schedule the scan soon and get some answers.
I, too, had a drop in platelet level for awhile so immediately started taking an iron supplement twice a week. Supplements that can decrease your count are fish oil and vitamin E. There are a lot of iron rich foods such as red meats, fish, poultry, spinach as well as certain cereals.
This is certainly a conversation to have with his doctor and maybe a nutritionist or dietician.
I know this is a challenging time so don’t forget to take care of you, too. Best of luck to you all.

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