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My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 18 8:57pm | Replies (402)
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@recipientofgrace

It's a type of leukodystrophy that impacts the microglia. The transplant gives fresh stem cells to take on the roll of my dying support cells in the brain. Nerve damage occurs from the microglia not functioning well and dying off. Mayo had a news story a few years back on someone who did very well after a transplant for the condition.

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Replies to "It's a type of leukodystrophy that impacts the microglia. The transplant gives fresh stem cells to..."
Lori, Volunteer Mentor | @loribmt | Oct 13, 2023

Good morning, Grace. I will be pouring all my positive thoughts your way for a resolution to this holdout with your insurance company. If a stem cell transplant could help reverse this condition for you I can’t understand their denial, especially since it’s been approved for other people with the same diagnosis at the same institutions. You deserve the chance to move past this!

Please keep me updated with what happens, ok? There are several of us in the forum who have had bone marrow transplants and we’re here for you. Hugs!

Please keep me updated with your progress.

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