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Lobular Breast Cancer: Let's share and support each other
Breast Cancer | Last Active: Nov 12 5:54am | Replies (395)Comment receiving replies
I was diagnosed with metastatic lobular BC which made its way to my gut. I’ve been on Ibrance and fulvestrant for 18 months and scans are stable…last set 9/12 CT chest, abdomen and pelvis. My markers are gradually increasing for the last 5 months but I’m still in a range that doesn’t set an alarm. I feel no different either. Yet I can’t help but think that the CT scans could be missing something. Suggestions welcomed. I live in NJ, oncologist is in NYC, but I’m considering going to a lobular specialist. Can anyone recommend one please? Thanks in advance…wishing you all the best!
Replies to "I was diagnosed with metastatic lobular BC which made its way to my gut. I’ve been..."
ILC here. I'm going in for second set of follow up imaging 11/10, CT of chest, abdomen, pelvis, plus bone scan. I'm wondering what specific markers are checked and watched for you? Markers have not been mentioned for me, and I think that is an important point to bring up at my next appt.
Good luck to you, and all of us.
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Mayo in Rochester has lobular oncologist.
Prayers for you. I too have ILC and am treated at Mayo in Fl.