I have just spent time reading over past comments and saw your reference to "lesions" which is not mentioned in most of the posting comments. So I've been wondering if I am the only one plauged by them. I never had these lesions or these awful, hard bumps until I began using the steroids, so I asked two gynecologists and my PCP if the steroids could have caused these painful bumps. They all said "no." But that doesn't convince me it's not possible. But then I thought maybe it's just LS getting worse despite the steriods. So now I am afraid to use anything now and my stress level is way up there. I've seen comments that stress makes the problem worse. I would love to find a vulvar specialist or any specialist who knows more about this awful condition. How does one find such a person? I'll start asking for referals from the doctors I've already seen but you'd think with my complaints about meds not helping they would have provided names if they knew of anyone.