← Return to New here: Looking for others who have NSCLC and information

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@lls8000

Hi @aprilradek, I'm glad that you are starting to feel better. Take your time, and allow your body to heal, be patient with yourself. The news that you have an ALK mutation is quite interesting to me, being an ALK patient myself. I'm Stage IV, so my treatments are/will be different than yours.
I hope that your oncologist is familiar with treating ALK and is able to explore all of your options. The ALK Positive organization (www.alkpositive.org) is very active in the search for new treatments and clinical advancements, they work closely with a number of 'ALK experts' across the country, and they have a support group that has been very helpful to me. It's so encouraging! I'll be interested to hear what you find out at your appointment on the 16th.

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Replies to "Hi @aprilradek, I'm glad that you are starting to feel better. Take your time, and allow..."

Hi Lisa,

Thanks for the site info I already checked it out, lots of information. I may be stage lV or III it depends on the results of the fluid I had in my lungs. It was such a small amount the surgeon was going to try to get some and send it with the rest of my samples. The NP didn't say anything about my fluid just my lymph nodes. Are you on ALECENSA or a different targeted therapy? There was some talk of my taking ALECENSA pre-surgery, but the team went for chemo first. It is nice to meet another ALK patient. I will let you know what the oncologist recommends next, I live in California I and am getting treatment at Stanford.
April