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New here: Looking for others who have NSCLC and information

Lung Cancer | Last Active: Nov 1, 2023 | Replies (111)
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@aprilradek

Hi, I met with the NP yesterday and she said one of the ten lymph removed along with my lower left lobe has cancer. She was just checking in on me but also had the pathology report.
I had the surgery on September 29th and I will meet with the oncologist Monday the 16th.
I really hope I don't have to do more chemo. I do have the ALK marker, so I am hoping for targeted meds and not chemo.
I feel better each day and can do a little bit more each day.
I did come done with shingles so that is a bummer! I am hoping it is a mild case.

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Replies to "Hi, I met with the NP yesterday and she said one of the ten lymph removed..."
pb50 | @pb50 | Oct 10, 2023

Shingles! That’s adding insult to injury! I hope You have a mild case. And I hope you get a tolerable treatment plan for your hot lymph node.

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Lisa, Volunteer Mentor | @lls8000 | Oct 10, 2023

Hi @aprilradek, I'm glad that you are starting to feel better. Take your time, and allow your body to heal, be patient with yourself. The news that you have an ALK mutation is quite interesting to me, being an ALK patient myself. I'm Stage IV, so my treatments are/will be different than yours.
I hope that your oncologist is familiar with treating ALK and is able to explore all of your options. The ALK Positive organization (www.alkpositive.org) is very active in the search for new treatments and clinical advancements, they work closely with a number of 'ALK experts' across the country, and they have a support group that has been very helpful to me. It's so encouraging! I'll be interested to hear what you find out at your appointment on the 16th.

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