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Making sense of PET scan report
Lung Cancer | Last Active: May 20 3:38pm | Replies (36)Comment receiving replies
@yellowstonelady- Hello. I've just celebrated 26 years of lung cancer survival. I had my third SBRT last October, and they aren't sure what they'll do if another zapping or something else. I have also lost a lot of tissue. I hate that it limits me at almost 77 and still kicking.
Things have changed so much in the treatment and discovery of lung cancers. Sometimes nodes just act up to keep us on our toes, it could be inflammation and nothing else.
I think that waiting another 3 months for a CT scan is a conservative thing to do now, don't you?
Replies to "@yellowstonelady- Hello. I've just celebrated 26 years of lung cancer survival. I had my third SBRT..."
You stated you had your third SBRT last October. Was each SBRT in different lobes?
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Thanks for telling me that. I can't tell you how much it helps to know that someone else is in the same limbo and making it through. Actually my onc said to wait for 6 months until my next CT which at first I was afraid to wait that long - but he said if I get worried of course I can always schedule a scan in three months. I checked with my GP/PCP and he showed me all the scans again and we looked at the spot again. He agreed completely that I could wait for 6 months until next scan. He's just my GP but I feel so much better when I talk to him about these things too.
I've been thinking that I should use this 6 months to investigate a second opinion at a larger institution in preparation for the worst case situation in 6 months. I'm sure they could offer me a multitude of treatment options....but this 6 months off is time of peace and rest. Not sure if I want to dive into more doctor visits and worry.