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New Here and need to learn fast

Lung Cancer | Last Active: Oct 31, 2023 | Replies (69)

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@sayitisntso

Well I got the biopsy result and it’s poorly differentiated carcinoma which I’m told means they can’t identify the primary origin. I just can’t catch one piece of positive news. I pray this doesn’t hurt my chances for molecular therapy- I have no clue. The thoracic surgeon who called with the results said the NGS will tell a lot more when it comes back but what he shared was short on detail. We moved my brain MRI up to today.. they called and had a cancellation so I took it. If anyone here has had this biopsy result or you’re aware of some other person/ forum.. I’m all ears.

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Replies to "Well I got the biopsy result and it’s poorly differentiated carcinoma which I’m told means they..."

@sayitisntso, That's interesting, and disappointing that it isn't more clear. Unfortunately, that tends to be the way early diagnosis can go; wanting answers and having to wait for one more scan or lab test. Hopefully the NGS test results point to the driver of the cancer, but Merry is correct, there are cases where they can't determine the primary source of the cancer, but we don't know that yet. More waiting... I hope your MRI appointment went well today. I just try to continue to breath and relax as much as I can through those scans. They just take so long!
All of the feelings that you're having are expected. Try to give yourself grace during this time. There are still too many unknowns to do too much research, so take the time to do what makes you and your kids happy. All of your feelings are valid, no matter where that takes you, just remember to pull yourself up from those deep spaces if you find yourself going there.
We don't yet know all of the information, so it's hard to know what to expect. And everyone is different too. Hugs!

I was actually told to expect that the path report on my nodule would be “we aren’t sure”.
I didn’t know until then that there was such a scenario. I assumed every cancer was typed and catalogued. Mine was Mucinous adenocarcinoma. He told me it was only 5% of lung cancers, but I’ve seen several
on this site, so I’m not sure that’s true.

Moving to an area I know nothing about, what is molecular therapy? Is that different than immunotherapy?

@sayitisntso, Just checking in on you. How are you doing? The waiting is such a difficult park of the diagnosis process. Have you heard back from your doctors on the NGS testing yet? Are you still waiting for the next steps?