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@jc100

I was just diagnosed papillary source uterine cancer after a total hysterectomy. I would appreciate hearing women’s experiences with this cancer. A six-cycle of Carbo/Taxol chemo was recommended.

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Replies to "I was just diagnosed papillary source uterine cancer after a total hysterectomy. I would appreciate hearing..."

I had it incorrectly. It is papillary serous endometrial cancer.

@jc100 Please be encouraged to know that I have just completed six cycles of chemo with the CARBO TAXOL plus KEYTRUDA. These drugs were used to treat my stage IVB endometrial cancer. following a total hysterectomy. As of March 2023, KEYTRUDA, an immunotherapy drug, was approved by the FDA to treat our type of cancer. After the second cycle, my oncologist lowered the TAXOL 20%. This drug causes the most terrible but manageable symptoms like hair loss, diarrhea and neuropathy, among other things. They also give you benadryl to ward off allergic reactions to drugs, and steroids that kept my weight up and made me prediabetic. The drugs is administered based upon your weight, so the steroids prevent you from shedding even a pound, so seek advice from a nutritionist before treatment. Nurses and doctors told me to eat whatever I wanted, like milk shake because you lose your appetite and tastes during treatment. So be careful to focus on consuming healthy proteins, fruit and vegetables. Chemo kills of good cells, so you need to eat iron ruched foods as well to help replenish healthy cells, otherwise your bone marrow will suffer, in my layman term. Eat the BRAT diet of diarrhea sets in, usually the first week. Happy to answer any other questions that you may have. Most importantly, stay positive and rely on the support of family, friends (but at boundaries so they don't visit to often or within the first 10 days after treatment when you're not at your best) and good forums like this one. God bless and keep you!

Yes I've been down that road and that is exactly what I was diagnosed and the treatment was the same 08/2013
My doctor told me after 6 round at every 21 days
No lesions found.
THEN six years later 2016 lesions are back. So RADIATION was given in peritoneal area and after everyday 5 days a week for 8-9 weeks doctor said no lesions found.
Then 5or6 years later in 12/2022 CT scan shows lesions again.
This time carboplatin and some other chemo drug every 21 days from JAN-MARCH 2023 had to stop due to debilitating side effects. THEN 07/23 CT Scan shows metastasized lesions and Cisplatin and some drug called GEMZAR at every 14 days AUG.-SEPT 2023 had to stop Cisplatin due to almost gave me a stroke. Then only GEMZAR until 09/15/23.
Admitted into hospital 10/15/23 due to side effects and CT Scan shows metastasized and i was told only six months to live.
It just seems that doctors should have seen in July 2023 no need to put me through the horrible GEMZAR infusions.
I really feel endometrial cancer is not researched and therefore doctors shoot in the dark hoping for good results.
Thank you for allowing me to share.