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Tips for working with your doctor to help pain

Chronic Pain | Last Active: Jul 8 5:10pm | Replies (74)

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@frances007

in reply to @scottrl I read your post with great interest and could not agree with you more on anything that you have written. Not too long ago I told my PCP that I wanted to feel like I "mattered" to him and to Sutter. His response, "Do you want another doctor?" Last night I finally had a response from the liver specialist to whom I posed a question after a CT scan revealed a lesion on my liver, and in my question I told her that I was reminded of an earlier comment she made to me during a video visit, and with whom a friend was sitting next to me and taking very copious notes because I do not hear well, and the doctor is from India. During that appointment she said to me that the radiologist cannot make a diagnosis, only the doctor can make the diagnosis of whatever. So, I mentioned in my message to her that I was asking about the lesion because I had remembered what she had told me in the past about radiologists. She told me that she did not recall making the comment, or that I had "misinterpreted" the comment and that further questions should be addressed with my gastro doctor who I filed a grievance against over a year ago when he essentially threw me out of his office because I was asking too many questions. This has been been my experience over the past 3.5 years while my clinicians try to diagnose my problem, while in the meantime I have lost an enormous amount of weight, take pain pills like candy and well, just continue to put one foot in front of the other.

While watching 60 Minutes this past weekend, I was especially astonished by what the fellow who developed IA had to say about what he had built. While it all sounds very dangerous, perhaps in the future there is hope for many of us who suffer, as soon there will be robots diagnosing us, and it is anticipated that AI will know a lot more about us than those doctors who choose not to treat us.

Furthermore, the next time I have to fill out a form that asks how I sexually identify myself, I told a friend I will check "other" and write down the word "unicorn."

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Replies to "in reply to @scottrl I read your post with great interest and could not agree with..."

How sad. But you gave me hope!!!! A I Currently we have AUI ! Unintelligent!

Plus guess we should form a club, got kicked out by doc. Me too!!!!! Saw 6 cardio’s. All in my head. But I found a new one before their letter came. Love him, caring. First things out of his mouth was, do you know how many patients I have that are on pain medication’s and also have cardiac problems? It’s not your pain meds. It’s your pain that’s causing your heart problems. I almost broke down in tears. Need to start a club. Yes I wrote a letter to the Director of the hospital pertaining to an electro cardiologist, who I waited eight months to see, who spent four minutes with me, and said my problems were due to my narcotic addiction! I take 7 mg a day that’s it. He walked out and I wrote the letter and all hell broke loose. Now even my PCP is handling me with kid gloves.
Received a letter one of 4 discussing my situation and what he wrote on my record. So if anywhere I go, now pegged as a junky. Had a atty send a letter of intent. Boy that went through the community! Handled with kid gloves, still no answers to my condition, been 6 years of strange symptoms. Only been on med 2 years due to a botched knee replacement!!! But I am not stopping. Do no harm, part of their ethics….it will be do no harm in the end. From Chicago, we don’t take things lightly! We all must stand up especially when we are not abusing!!!!

No one, no one thing can know more about you - than you.