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DiscussionType 1 Neuroendocrine Tumor with no risk: What should I ask doctor?
Neuroendocrine Tumors (NETs) | Last Active: Oct 14, 2023 | Replies (31)Comment receiving replies
Replies to "UPDATE: During my last endoscopy, two nodules were removed. These are the results: DIAGNOSIS: A. STOMACH,..."
Hi @racb,
As I recall you were having an appointment with a surgeon on Friday. I hope that went well and you got enough information to put your mind at ease regarding the next step in your treatment.
When it's convenient for you, please post an update.
Hello @racb
It is good to have a list of questions to ask prior to your appointment with the surgeon on Friday. I'm wondering if you have had a Gallium 69 PET Dotatate PET scan. Here is some information regarding the importance of this scan in checking for NETs,
https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/
I would also encourage you to read the following information from the Carcinoid Cancer Foundation regarding the types of tests to diagnose and treat NETs.
https://www.carcinoid.org/for-patients/diagnosis/diagnosis-and-follow-up-tests/
It might be good to request the bloodwork and the scans suggested in this article.
I look forward to hearing from you again after your appointment on Friday. Will you post and update and let me know what information you get?