My research has led me into the same area of concern. My story is mine and like what I gather from yours, ours relate very much so where pain is concerned. I was diagnosed with Fibromyalgia year 2001 after an injury on the job, forced my retirement in 2005, after 22 years. I worked US Department of Defense/Marine Recruiting & Air Force. My job was stressful but doesn’t compare to My suffering of today, I am totally disabled and have a vast number of issues that have compromised my overall well being. I have been unsuccessful in getting the help through traditional health professionals. Truly, aside from Prednisone, Gabapentin, Lyrica, Cymbalta etc, Anti Depressants, & last but not least the very controversial Opioids, they now are clear lead to other catastrophic events, they admit not knowing what else can be done, for patients like myself. Let’s just say I have tried them all, under doctors direction. Today, I’m in the worst pain imaginable. So back to Dercrum’s & Lympomas. I realized after paying very close attention to my body, the pain in my thighs, hips, buttocks, arms was different in the intensity and severity, over time. I feel these solid felt nodules under the surface of my skin and when gently applying pressure, the pain is staggering. Self massages bring me to tears every time. So anyone else’s touch sends what feel like electricity through my entire body. I can’t get the treating physicians to understand, that I’m being physically and emotionally tormented. I don’t have a definitive diagnosis but symptomatically I fit the paradigm. I am so sorry for everyone who suffer from this horrid disease. However, knowing that someone out there, has a true understanding, helps me to know that I’m not crazy, in pain, overweight, depressed and miserable all by myself.