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Whining off keppra

Epilepsy & Seizures | Last Active: Oct 13, 2023 | Replies (6)

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@hopefullibrarian

I am so sorry that you are having to go this. Keppra was horrible for me. It seems to be the go-to AED. I've had 2 seizures in my sleep 6 year apart, both tonic-clonic. Both times, the response was to immediately put me on Keppra. I could't think clearly and that was making me angry. The first time, I just stopped taking it within the first week with no negative effects, and didn't take anything again until after the 2nd seizure. Because of the combination of the seizure and undiagnoses osteoporosis, I broke my back. That scared me enough to stay on medication, but Keppra was again a problem--turning me into a zombie. My neurologist switched me over to lamotragine. I almost instantly felt better, but nothing's perfect. I still have trouble thinking clearly at times, and, like all AEDs it can have some really bad side effects including significant metabolic effects on the bone. For someone with osteoporisis, I have to decide what the lesser evil is. Because my seizures were so far apart, my case is considered a mild one. I am strongly considering being weaned off of it entirely and trying a natural approach. I don't think that there is a neurologist alive who would ever "recommend" going off of AEDs, but in the end, it's your decision.

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Replies to "I am so sorry that you are having to go this. Keppra was horrible for me...."

I need to add, that if you do decide to go off of Keppra, work with your doctor to do it safely. I was lucky the first time I stopped, I hadn't been on it for long enough for it to be a problem. There's no way I will wean myself off of Lamotrigine. My doctor's help, whether he agrees with the decision or not, is essential.