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Meningioma - I'm scared to watch and wait

Brain Tumor | Last Active: Dec 8, 2017 | Replies (26)

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@rareeby

thanks for the referral to meningioma mommas -- definitely will check it out -- in 2009 I was diagnosed with a benign meningioma so small that most MRI radiologists and some neurosurgeons cannot find it -- even with contrast -- however, the first lab report was off by a factor of 100 -- and I thought it was wrong because wouldn't I know if I had a golfball sized tumor? Now, I know that it is very possible that even a golfball sized tumor could go unnoticed for decades. My tumor was discovered by accident, and since then I have undergone annual MRIs w and w/o contrast to ensure that it is not growing. Yes, it could be removed, but why surgery when life can go on unchanged without it. Now my neurosurgeon suggests that I have an MRI only once every other year because MRI's are not all good for you, and could be harmful. I countered with a compromised and said how about one without dye every year, and one with dye every two years? The only symptom I MAY have hade was a few seconds of double vision in an eye that is not my best one, and has other reasons for not behaving well.

Thoughts?

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Replies to "thanks for the referral to meningioma mommas -- definitely will check it out -- in 2009..."

This is my 2nd year of knowing that this exists and is growing slowly. Found out about it by accident. The docs don't want to have anything done to this tumor that sits between my brain and my skull. Also they don't want me to have any MRIs. The #1 doc doesn't want to see me again and the #2 doc wants me to contact him if and when I have any of the symptoms such as the eye problem you were told about. I'll keep looking for info that suggests new treatment. Thanks for your contact.