← Return to New to Prostate Cancer with a boatload of questions, but who to ask?

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@areallyrawdeal

Hi I’m Marcel: I have found out the hard way that being diagnosed with cancer makes you a doctors personal ATM. I went for over two years with severe lower back pain that know doctor would address, even when I told them that suicide has become my only option. All that was said was, you try to hang in there and left me. Then while looking on the internet I saw that lower back pain in an older man is a red flag for prostate cancer.? I told the doctor to check my prostate and biopsy came back as Gleason nine. Once that was found doctors came out of the woodwork because now they could make money off me. My cancer by the time of diagnosis had already spread so I refused treatment. I asked why no one would help for over two years and now they all want to help? It comes down to money and that’s very sad that life is measured by how much can they make off of a patient’s suffering. I know how you feel about having to pay for answers to all the questions. Best wishes to you and God bless.

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Replies to "Hi I’m Marcel: I have found out the hard way that being diagnosed with cancer makes..."

I would recommend going to a center of excellence (such as Mayo-Rochester). Rural doctors just don't have the experience that is needed. Before I retired, I went to my local doctor (Davenport, IA) every year to have a physical. One of the tests they performed was PSA level. I was busy traveling for my job, so believed what they told me (everything looks good with your tests, good to go). After retiring, I wanted to more closely manage my health. Went to a cardiovascular team to change my diet so I could get off the statin I had been taking for a decade. The nurse practitioner was a friend of our, so she reviewed my entire medical file. At the end of my first meeting, she asked me if I was addressing my prostate problem. I asked, what prostate problem. She let me know that my PSA had been rising for over 6 years, doubling three time, with an increasing velocity. At that point, I went to Mayo-Rochester, was diagnosed with PC (Gleason 7-4/3). Being 56, I went with a radical prostatectomy and doing well now (10 months later).

Bottom line, these mid-sized practice doctors cannot be trusted. You must do your own research, manage your own health, and get to a center of excellence when there is a problem.

Best of luck,

Jim