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mskow (@mskow)

Hematoma from L2-L5 post laminectomy

Spine Health | Last Active: Oct 8, 2023 | Replies (6)

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@mskow

Jennifer, I didn't mean to respond in such a negative manner to your suggestions. I appreciate you taking the time to seek out those links and send them to me. As you might imagine I, too, spent a far amount of searching Dr. Internet and found any number of articles that cite this development as being somewhat rare. Yet the neurosurgeon at Froedtert Memorial Hospital in Milwaukee, WI (supposedly the best in the area) insists that this is "NORMAL" that there is no impact on my negative results, and that there is nothing to be done.

I'm collecting names of reommendations and will decide where to start trying to find answers. If I'd not had such successful surgery in the past I might not have had this surgery or might no just accept my fate.

Thank you again

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Replies to "Jennifer, I didn't mean to respond in such a negative manner to your suggestions. I appreciate..."

@mskow Thank you for your post. I do understand being frustrated. I went through that myself when 5 local spine surgeons turned me down and I had spinal cord compression in my neck that all of them could see. I hadn't tried Froedert yet, but had thought about it. What they didn't understand was how that created pain all over my body and they were afraid to take me as a patient. I came to Mayo after I found medical literature with cases like mine, and I found that because of reading literature authored by a Mayo surgeon and looked up terminology. That was my answer after 2 years of being dismissed, and spine surgery gave me my life back. I think that 5 refusals helped me get accepted at Mayo because they really try to offer expert care that cannot be obtained elsewhere. If they are offering exactly the same care that you can get at home, why should you need to incur the extra expense of travel? That is why I recommend Mayo because my experience as a patient there was exceptional. Mayo really is a special place and I didn't know medical care could be like that. It spoils patients when they can't find the same level of care as they received at Mayo. All patients are welcome here on Connect, and many are Mayo patients who like me, just want to help other patients after receiving great care. I am a volunteer. The moderators and director here are employees. The purpose of the forum isn't to recruit patients for Mayo; it is to share information that can help and to give support and that can be anywhere.

I do know there is a nursing shortage because I have heard that from a friend who is a nurse at Mayo. I just checked the job posts for nurses at Mayo in the Rochester campus and there are 18 pages of them seeking nurses across many specialties. In order to have more capacity to help patients, there must be a pool of trained medical professional candidates to hire in order to increase medical capacity to patients. I see the TV commercials too for Mayo, and they have to stay visible because they are a destination medical facility. The local rural community in Minnesota does not have enough patients to support a large medical institution, so reputation and staying visible nationwide is very important. We also just had a few years of pandemic where medical professionals decided to leave their professions.

Mayo has to answer about insurance and billing, but what about considering real Medicare and not a "Medicare Advantage " Plan. The "Advantage" plans kind of act like HMO's in that they mostly work for local hospitals or ones in the same state. When you have real Medicare, you can use it anywhere in the country, and Mayo in Rochester accepts real Medicare along with a supplement insurance like Mutual of Omaha. Call billing and ask because it isn't always the same at every campus. I called the Mayo billing department to ask that question when I need to make the same decision because I wanted insurance that would be in network if I needed to return to Mayo as a patient. Since enrollment is coming up, you could choose to go to real Medicare and have an option to be seen at Mayo. "Advantage" plans are not an advantage, that is just marketing for profit.

Don't let past disappointment color this decision. If you need to seek an opinion at Mayo, you would be able to send in records when requesting an appointment and get that reviewed at no charge, but not having insurance that is good will kill the opportunity. If on review, Mayo doctors thought they could help, you may be offered an appointment. I do know, that my surgeon there likes difficult cases, and if you are one like that, it may work in your favor. He is one of their best and has a waiting list like all good surgeons.

Yes, it can be hard to get an appointment, but sometimes patients re-apply and are accepted. I think your test results indicate that you deserve another look. If you get the insurance worked out, you could try. Also, there are other hospitals connected to Mayo in the Mayo Clinic Health System with locations in western WI and northern IA. Often they are staffed by Mayo trained doctors, and those doctors have direct access to refer patients for further evaluation at the main Rochester Mayo Campus.

I know how good my surgeon Jeremy Fogelson is, and to get his eyes onto your imaging may make a difference if you can get your ducks in a row to make that happen. He is one of Mayo's best surgeons and does very complex surgeries for deformity and teaches in the neurosurgery program. FYI, Cleveland Clinic is similar to Mayo, and also recommended to me by my doctor when the local surgeons backed out. There are also "Upright" MRI machines that take images in a seated position.

So what do think? Does this give you a new strategy?