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Making sense of PET scan report

Lung Cancer | Last Active: May 10 8:11am | Replies (30)

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@yellowstonelady

It seems this spot has been around for 15 years and it is now about 1.7 by 2.0 cm. Do you remember how large it was 15 years ago? It seems to be slow growing. The SUV of 2.6 is low which makes sense for a slow growing spot. Usually 2.5 SUV is the cut off for suspecting cancer in a lung nodule. I am not sure about the node SUVs they talk about.

I had lung cancer 23 years ago which a huge 10-12 cm tumor on my right lung. I had a thoracotomy and they removed 2/3 of my right lung. Very painful. Very scary. I was only 46 so I was strong and recovered well.

All was OK for the next 21 years, then two years ago I had a new spot in my left lung with 4.4 SUV. We were pretty sure it was cancer. They were able to biopsy it to confirm. It was the same kind of lung cancer I had before. No way I was having another thoracotomy plus I didn't have much lung tissue to spare after the first surgery. So I had this tumor zapped with 2 days of SBRT radiation treatment. After the SBRT treatment, it took about a year for the cancer tumor to go away. It is now gone.

About 9 months ago they found a new spot on the remainder of my right lung. I have a CT scan every three months to check it. It can't be biopsied without risk of lung collapse. It had a 2.7 SUV. It has stayed about 1cm for the last 9 months although if they show the last 3 ct scans right next to each other and we squint our eyes it seems to be growing very slowly.

So what to do about a slow growing spot with a low SUV like this? Because I am about 70 and because I have shortness of breath already from previous surgeries, we have opted to keep watching this spot. There is a chance that I won't need to treat it. I am hoping that it will peacefully co-exist with me for the rest of my life. On the other hand, should it start growing again then I will need to treat it with more SBRT or an ablation technique. Even though it has a low SUV, it most likely is the same cancer I've had for the last 23 years.

If I were younger or had more lung tissue then I'm sure they'd treat my newest spot immediately. Not sure what your age or physical situation is. The two nodes that lit up on your PET seem to be concerning too. I don't have any nodal involvement showing on my PETs.

So it is hard to know what to do. I can tell you that instead of a thoracotomy like I had 23 years ago (major scar and pain and risky surgery), they often can now do something called VATs which is laparoscopic surgery leaving smaller scars and less recovery time. Also supposed to be less painful.

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Replies to "It seems this spot has been around for 15 years and it is now about 1.7..."

@yellowstonelady- Hello. I've just celebrated 26 years of lung cancer survival. I had my third SBRT last October, and they aren't sure what they'll do if another zapping or something else. I have also lost a lot of tissue. I hate that it limits me at almost 77 and still kicking.

Things have changed so much in the treatment and discovery of lung cancers. Sometimes nodes just act up to keep us on our toes, it could be inflammation and nothing else.

I think that waiting another 3 months for a CT scan is a conservative thing to do now, don't you?

Well you know I had VATS for left
Lower lobectomy. 3 smaller incisions. Not a walk in the park and I still feel like I have a vise grip on my rib cage when I try to breathe deeply. But all in all not terrible. And I’m 73.

Thank you. Tha t is a lot of good information. I see the pulmonologist tomorrow for his read on the PET scans.

Some questions I have:
I read that the SUV numbers on my report are PEAK SUV and not Max. Which, from what I can gather PEAK is qualitative and Max is quantitative. But what does that mean IDK

And the SUV for the nodes is like 3.2 and 3.4
But it says the liver SUV is 4.6 I am hoping that's because the liver is processing the radioactive medication they injected.