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COVID vaccines and neuropathy

Neuropathy | Last Active: Nov 7 12:50pm | Replies (2237)
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@dinawashere

Weird! I’m new here. I don’t like these forums (no offense) but I’m getting desperate and I belong to one other one called “stuff that works “ (ironically nothing works) anyway all they talk about is how Covid and/or vaccines did this or that and I suffer from sfn so horribly for over a decade now that I never thought about the issue. But last week I got my COVID booster and my flu vaccine at the same time and it was over a week of a really bad flare up where I couldn’t even wear pants from the burning. So I thought hmmm? Maybe it was the covid booster or the fact I got both vaccines at the same time? Who knows? More mystery, more thoughts on a disease that has no cure and no treatment.

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Replies to "Weird! I’m new here. I don’t like these forums (no offense) but I’m getting desperate and..."
Lori, Volunteer Mentor | @loribmt | Oct 8, 2023

Hi @dinawashere Welcome to Mayo Connect. The goal of this forum is to be a kinder, gentler place than most of the online support group formats. Occasionally discussions get a little heated and we strive to bring that back under the guidelines of respect and civility. So I hope that you’ll feel welcome and find the support you need here.

You may be right about your Covid booster or any vaccine actually, allowing for a flare up of some pre-existing conditions. A few years ago I had a serious spinal cord inflammation not related to Covid or the vaccine. With treatment and therapy my spinal cord healed and back to normal.
About two weeks after the first vaccination I was alarmed one morning when I woke up with some of the same initial symptoms of my demyelination of my spinal cord incident a few years before. So I quickly called my bone marrow transplant team at Mayo to let them know. My doctor scheduled an MRI and my neurologist confirmed that my spinal cord was ok. Pfhew. Speaking with the neurologist he did mention that the medical community was seeing evidence at that time (early 2020) that some patients with pre-existing neurological conditions such as neuropathy, Bells Palsy, Shingles, etc., were experiencing some minor symptoms of their disease which disappeared within 2 weeks to a month. My symptoms did go away within two weeks. When I get a Covid vaccination or flu shot…and recently an MMR vaccine, each time I get vague symptoms again but they go away.

Has your flare up gotten any better for you?

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