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Lumbar Back Problems

Spine Health | Last Active: Nov 3 8:03am | Replies (34)

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@jenniferhunter

@suev I'm sorry, I missed your question to me. If you wanted to alert me to a response, you can "at mention" me by typing @jenniferhunter in your post. That will flag me with a notification. My cervical fusion was very successful and it took care of all the pain I had which was due to spinal cord compression. It has been several years since then and I'm still doing well. It probably took about 6 months to recover since I needed to do rehab after being in a neck brace for 3 months. That was because I wanted a fusion without any spine hardware. Thank you for asking. This was the story that Mayo did about me. https://newsnetwork.mayoclinic.org/discussion/using-the-art-of-medicine-to-overcome-fear-of-surgery/

Have you had surgery for your spine or are you in the process of waiting for a surgery? Did you get other opinions from different doctors? I sounds like your surgeon wants to remove and replace vertebrae which sounds very involved. Did they give you a reason for the erosion of bone and how to stop that from happening?

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Replies to "@suev I'm sorry, I missed your question to me. If you wanted to alert me to..."

Hi Jennifer
What a lovely article and portrait of your surgeon. I am so happy the surgery enabled you to continue your passion ❤. My surgeon is recommending surgery. Its would be very intensive as it would entail the removal and replacement of vertebraes from T10 to L3 so I wouldn't be able to twist ny body but I would be able to bend and walk which at the moment causes me alot of pain given the bone erosion is prevalent at T10-T12 and it is causing pressure on my spine which is curving outward. My surgeon feels confident he will be able to successfully replace all vertebraes. My spine doctor has never seen anything like it before.
My rheumatologist and a score of others who have reviewe my file believe it to be SAPHO. I take Cosentyx injections from Novartis which is helping to keep the inflammation down which they believe is eroding my back vertebraes. Fortunately my neck vertebraes are fine so far. I have to have an updated CT scan and scoliosis xray so my surgeon sees what has transpired. I too am very afraid of surgery and chose to take 6 months to get to a place of peace and acceptance as my pain has subsided immensely due largely to a 4 motor chair that helps relieve stress on my bertevraes given the lumbar vertebraes are pretty well bone on bone. I have lost at min 3-4 inches in height. Thankfully I was 5 ft 10 so not sure if the surgery will increase my height again. I haven't yet discussed it with my surgeon. Why did you elect to not have spinal hardware? I don't think its possible for me given I have so many vertebraes to replace.