← Return to Lumbar Back Problems
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Spine Health | Last Active: Nov 3 8:03am | Replies (34)
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← Return to Lumbar Back Problems
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Hi Jennifer
What a lovely article and portrait of your surgeon. I am so happy the surgery enabled you to continue your passion ❤. My surgeon is recommending surgery. Its would be very intensive as it would entail the removal and replacement of vertebraes from T10 to L3 so I wouldn't be able to twist ny body but I would be able to bend and walk which at the moment causes me alot of pain given the bone erosion is prevalent at T10-T12 and it is causing pressure on my spine which is curving outward. My surgeon feels confident he will be able to successfully replace all vertebraes. My spine doctor has never seen anything like it before.
My rheumatologist and a score of others who have reviewe my file believe it to be SAPHO. I take Cosentyx injections from Novartis which is helping to keep the inflammation down which they believe is eroding my back vertebraes. Fortunately my neck vertebraes are fine so far. I have to have an updated CT scan and scoliosis xray so my surgeon sees what has transpired. I too am very afraid of surgery and chose to take 6 months to get to a place of peace and acceptance as my pain has subsided immensely due largely to a 4 motor chair that helps relieve stress on my bertevraes given the lumbar vertebraes are pretty well bone on bone. I have lost at min 3-4 inches in height. Thankfully I was 5 ft 10 so not sure if the surgery will increase my height again. I haven't yet discussed it with my surgeon. Why did you elect to not have spinal hardware? I don't think its possible for me given I have so many vertebraes to replace.