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Can PMR be induced by Exercise
Polymyalgia Rheumatica (PMR) | Last Active: 1 hour ago | Replies (98)Comment receiving replies
I started drinking a collagen powder supplement in my coffee and after about 2 months my PMR began. I struggled and finally went to a rheumatologist who diagnosed it. But I had stopped all vitamins and collagen a week before seeing him and my symptoms had somewhat improved. So I added in slowly all but collagen with no changed then I added collagen in and my symptoms returned but at the time I didn’t put it together so I started prednisone and with in 4 hrs my symptoms disappeared. So my dr diagnosed PMR. I stopped all vitamins and supplements and continued to feel great no fatigue no pain. After a month I slowly added vitamins back and felt fine. One day I added collagen and within 3 days despite prednisone all my symptoms returned. Sooo… needless to say I have not taken any more collagen. My dr agrees the collagen could be aggravating the inflammation. I am now 2 months into prednisone and beginning to taper down with good results so far. I will be at 10 mg next week 10-10-23 for a month then hopefully to 5 mg in November, as I am having knee replacement in December. Hope this helps. I know we are all different with different outcomes.
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Incidentally, I also used to take the collagen powder in my first coffee for the day to make sure its "beneficial" effects were maximised.
I think your last sentence defines PMR correctly. What works for one throws another into a flare. Bloody awful unpredictable disease.
I'm at about 5 weeks into P.MR. I had to self diagnosed, cause my Doctor said I didn't have pmr even though I had all the symptoms. Fortunately, I had some prednisone left from a previous prescription that I did not use. So I started treating myself starting at 15 mg which miraculously stopped all my symptoms. I initially wanted to get off the prednisone. And did not do my research enough. And I was reducing very quickly, which caused me to flare so i went back upto 10 mg. And now reducing down more slowly..... But I too also was using collagen every day and sometimes twice a day. I had a funny feeling about this collagen being a possible cause of my PMR. It was very difficult to find a rheumatologist, but I finally was able to get one. And he said that if I had not started on my own, like I did, it would have spread down to my hips.
@katejaha that is almost my story, only two years later. Was the collagen marine or beef?
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Very interesting, thank you. Hydrolysed collagen powder contains a lot of hydroxyproline which converts to oxalates in the body. I suspect that may be the cause of my (likely) collagen induced PMR, so now I eat a low oxalate low lectin diet.
Collagen type 2 (the type found in marine collagen) was years ago commonly injected into lab rats and fed to piglets & sows to induce and study chronic arthritis. When the collagen was stopped after 2wks, the arthritis resolved, but in pigs that consumed it for 4wks, the symptoms either did not resolve or returned after only one collagen dose.
Unfortunately I listened to the insistent claims of collagen sellers that it HELPS joint pain and continued to take it for 4 weeks. As you say, we are all different in how we react to various foods and chemicals.