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Struggling with making an osteoporosis treatment decision
Osteoporosis & Bone Health | Last Active: Jun 4 11:43pm | Replies (661)Comment receiving replies
I too am struggling with the treatment decision. I’ve had osteoporosis for about 10 years. Have done supppements and chinese medicine only. I’m 62 years old. My last scan showed -3.8 in the lumbar and -2.4 in the hip and femur , doctor is recommending Tymlos for two years followed by Prolia, ongoing. My biggest concern is hearing that if I have to discontinue the Prolia (maybe I have bad side effects or something), that I will have a rapid decrease in the bone density, I’m concerned about this treatment being a life sentence. I’m afraid of not doing the treatment, of course because of the possibility of spontaneous fractures, etc. Any thoughts and experience welcome. Thank you.
Replies to "I too am struggling with the treatment decision. I’ve had osteoporosis for about 10 years. Have..."
There is an option of Reclast instead of Prolia. It is a yearly IV infusion. I told my Dr. I would not do Prolia because I’m not committing to a lifetime of this drug.
I haven’t started anything yet, but probably Evenity to start. Waiting to hear about co-pays first, before I commit. Wishing you luck with your decision. This group has given me a lot of very valuable info.
Good evening @kaa1 and welcome to Connect. If I understand your post, you are trying to make a difficult treatment decision to increase your bone growth and then protect what you build. My endocrinologist recommended the Tymlos option. It worked very well. I had no side effects during the two years of daily injections.
I was also referred to Prolia and received two infusions. That's when my body said no more and began to react. I even kept a calendar of the days that my jaw complained. I found out that my body doesn't do well with major infusions every six months or so.
On the anniversary date of the Prolia, after replacing my provider, he replaced the Prolia with Alendronate.....a safe and sure medication for me that is taken every Monday morning. It has been 18 months and I have survived the weekly capsule very well. In a few more months I will be able to get the two-year Dexa Scan results.
I notice that having side effects from Prolia is your major concern. You can transition like I did without losing any of your new bone development.
Does this make sense the way I presented it?
May you be safe, protected, and free from inner and outer harm.
Chris
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@kaa1 you can do Reclast or alendronate after Tymlos. If you do Reclast, you may be able to take a medication break depending on monitoring with blood tests.