I am sorry. Just seeing this comment. There was a recommended extensive surgery but they put it on hold given there was concern about bone density and whether it would hold if they did the surgery.

At the moment, I am taking a monthly injection by Novartis called Cosentyx which which blocks IL17 gene expression to reduce inflammation. It has lessened according to my last MRI in August 2023. I will be undergoing some more blood and urine test to check for C Reactin levels and othere to vheck for bone loss and reabsorption to see if I am losing more bone in the hopes there is an improvement. I do not want to take bone density medication as it has its own issues and I am instead working on trying to prevent more bone loss by doing microbiome balancing by doing a detox to help with nutrient absorption. I am also started taking bio-identical hormones replacement as 50 percent of women who are post menopausal who don't take them end up with osteoporosis. I am also taking supplements like collagen, calcium, magnesium, vitamins E and K2 plus others to help prevent more bone loss and encourage new. I have issues with medication not agreeing with me so I take dilaudid and ibuprofen to help with pain reduction which doesn't help that much unfortunately. It simply takes the edge off. I find meditation and avoiding stressful situations helps more. My body and brain is used to pain so I am working on trying to rewire it to convince it that I am safe and that there is no need to continue to cause me pain.

Sorry I couldn't be of more help. I hope you have found an effective solution to your situation. Sending you love and light.