Pain after hysterectomy

Hello I’m so sorry I’m just seeing this! Unfortunately, not a lot has changed. Some days the pain is very bad, but is eased a bit with 800 ibuprofen, which I don’t like taking on a daily. The pain is in the same area, right lower pelvic.
I go to for checkups every 3 months..My oncologist thinks it is very likely scar tissue.
Again, I’m so sorry I missed this. Thank you so much for your concern!

I don’t know why, perhaps it’s my lack of being tech savvy, but for some reason I’m just seeing these wonderful responses! The pelvic floor therapy and floating pool both sound amazing. I live in such a small community I know I will have to do my research. Im so hopeful I can find some help.
Thank you so much for sharing your knowledge and experience.. also for making me laugh “ Susie Sunshine” 😂
I hope you are doing well!

Good Luck ! I hope you can get some help. Let us know how you make out !
Here is to less pain !!!!!!

Thank you so much!

Hello, @jjevits and @hlp123

“Susie S” ☀️here. I’m sorry it took so long for you to receive the messages that were helpful and glad that they were. I’ve been thinking about how you could find good, solid PT and pelvic PT (I’ve needed and benefitted tremendously from each/both). It occurs to me that checking with the nearest medical school to see if they also have a Physical Therapy training department and whether doctorates in PT are offered. Then I would call there. I would imagine this organization could also direct you to your closest possible providers for pelvic PT. https://www.aptapelvichealth.org/#%23
For a rehab gym, where there are likely physiotherapists, trainers and gym equipment, I don’t yet see a professional association. Some places call themselves sports and rehab facilities. Again, I would call the closest university physical therapy department to ask. For me, my PT is covered (minus deductible), and at my rehab gym, I can use the facilities between my PT sessions for free. They have recumbent bicycles and elliptical machines and a walking pool, none of which I’ve got at home. An added bonus is that there are PT sessions happening there all day, so my PT’s are seeing me trying to do what they’ve given me for “homework” and will give me a thumbs up (or tell me later if they see something that they should bring to my attention around how I’m going about it). I could never afford this gym membership if I wasn’t doing PT. The other thing I would do is ask whoever is telling you that your hip pain is likely from scar tissue to please write you an order for a PT and a pelvic PT evaluation. PTs can also have expertise in managing scar tissue. The doctor may not realize that a lot can be done to relieve your pain (aside from NSAIDS or narcotics) and return you to functionality in your daily life.

I SO wish each and all of us the most access to care that restores us to living a life that feels meaningful and joyful…I can’t think of a better way to improve my chances of avoiding or putting off a recurrence of my cancer. Sending warmest and best wishes.

Gynosaur

Hello Susie S!! I can not tell you how much it your response means to me!For you to take your time to care and think about how you could help is truly amazing! Your suggestion about the medical school is an excellent idea..and although my hometown is extremely small there is a university with a medical school about 30 miles away. I’m going to contact them on Monday.
Again, I can’t thank you enough! I will keep you posted!

Yes !
Thank you for all the excellent advise !
I will continue to share my experiences and I am so very appreciative that you take the time to share your experiences and knowledge !
Again
Thank you

I’m so sorry to hear that PT was so very in-helpful. Every single time I meet with the PT (now down to twice a month), their first question is “what have you noticed since the last session?” I have to keep notes or I’d forget otherwise. When things hurt after a session, they use that information to tailor what we work on next. Some of the “new” or intensified pain has to do with shifts in how I’m now using my body revealing weaknesses or shifts that have been brought about by what we’ve just done. But the PT always (so far) been able to give me something else to try that addresses that new discomfort. Or, they’ve been able to say, “this is a natural consequence of the change you just made, and it will subside soon.” Just having my pain explained and/or being given something that works week now, is super helpful and has built my trust in them (I have two PT’s and their interns human who share me as a case). What I keep learning that I CAN do is start as slowly as needed, but keep moving with specific guidance of my PTs to strengthen the muscles that surround my spine, pelvis/hips, trunk and legs/ankles, while simultaneously stretching and relaxing muscles in my pelvic region (where SO much was removed and therefore has to re-organize itself). All of this has reduced my joint pain tremendously in the 7 months since my surgery. What aches and pains I fo have I now understand that I can move through, as doing so is not causing damage, and I notice it much less (no longer a danger signal).

And with respect to “floating,” I’m finding it is becoming more widely available, but certainly isn’t everywhere. I live in a rural area so do this when I head toward “town/the big city” for other appointments and much more rarely than I would like.

The Pt should be more accessible, and if a PT is not able to give you more helpful feedback, you might consider calling a university or medical school in your larger area and asking if they offer a doctoral program in physiotherapy. If they do, you could ask your local PT to consult with them, or ask if you can meet with one with more specific expertise around arthritis and spinal compression to speak with you and/or your local PT by video or phone.

I certainly wish each of you access to what you need for your body and a better experience.

Sending warm wishes and my hopes for all of us to live as comfortably and meaningfully as we can,

Gynosaur