Connect
← Return to Has anyone had IVIG Infusions for Neuropathy?
Discussion
Has anyone had IVIG Infusions for Neuropathy?
Neuropathy | Last Active: Oct 3 7:57am | Replies (491)Comment receiving replies
Your neuropathy has caused severe problems and I am wondering if a diagnosis of CIDP (chronic inflammatory demyelinating polyneuropathy) or monoclonal gammopathy neuropathy has ever been considered. I have both of these and am receiving IVIG now (just started 2 months ago. It has helped some but is not a cure. If you’re in the US an evaluation at Mayo Clinic would be helpful to nail down a diagnosis. My situation got suddenly worse two weeks after my first Covid infection. It’s so hard to live with and I wish you the best for getting the help you need!
Replies to "Your neuropathy has caused severe problems and I am wondering if a diagnosis of CIDP (chronic..."
Thank you for responding. I have been trying to find someone on IVIG therapy. My understanding is it takes awhile for it to kick in but it can reverse some of the damage not all.
Connect
I neurologist passed away Sep 2022 he did the EMG, nerve conduction test along with the punch biopsy for the small fiber neuropathy. . He almost had Ivig therapy approved with the insurance company. Now they will not do anything. I have been referred to Heidelberg Germany neurology clinic they lead in the studies of neuropathy. I do live in the US Dallas Tx. My family doctor used to work for the Mayo Clinic has offered to refer me. Do you get the treatments where you live or at the Mayo Clinic and how often? I took IVI G therapy as a little girl until I turned 18 and was off my parents insurance. The doctor passed away and my parents did not get my medical records. I have always had a low immune system. It can be given two ways IV or subcutaneously which way are you taking it?