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Merkel Cell Carcinoma: I'd like to hear from others

Neuroendocrine Tumors (NETs) | Last Active: Oct 20 7:30pm | Replies (133)
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@elizabethc0394

Hi - sorry to hear that. I, too am Stage 3 Merkle cell carcinoma, diagnosed in April.

I am 57 year old woman - survived breast cancer in 2015. I am otherwise healthy and very active. I wasn't sick one day with the chemo I received. This immunotherapy has made me very sick. I started a two drug (IPI & Nevo) regimen immediately after diagnosis. I didn't get sick until after the third treatment, pancreatitis and colitis. This forced me to stop the cancer treatment until the steroids (really high dose prednisone could get it under control)
After more than 3 months, I finally received another immunotherapy treatment since my pancreas numbers were close enough to normal. Yikes, right back to pancreatitis. Back on prednisone 🙁

This is my first post as well.

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Replies to "Hi - sorry to hear that. I, too am Stage 3 Merkle cell carcinoma, diagnosed in..."
Colleen Young, Connect Director | @colleenyoung | Oct 20, 2023

@elizabethc0394, will you be having more immunotherapy treatments or has a different treatment plan been suggested?

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rogermcintire | @rogermcintire | Nov 11, 2023

Hello Elizabeth, just checking in to see how you are doing.

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rogermcintire | @rogermcintire | Dec 27, 2023

Just checking in to see how you are doing. I'm hoping well!!
I have completed five immunotherapy treatments using OPDIVO and as of yet no side effects. After fourteen radiation treatments to the left side of my face there are unpleasant but tolerable side effects.
The words, "This too shall pass" have taken on a special meaning to me!
Here's hoping your holiday season is filled with love and peace.

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mktz49 | @mktz49 | Jul 19 5:14pm

So sorry to hear this .

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