@joan7 Your disease progression is remarkably similar to mine. I'm 64 years old, male, northern European descent.

I had what I think was Covid-19 in January 2020 (not tested), was also sick for about 2 months, and also never felt 100% again. It left me in a permanently reduced energy state. I could exercise and be active, but I has to much more carefully manage my energy.

I had Moderna vaccines as well, multiple doses starting in March 2021.

PMR started on January 14, 2023, and it was very severe, with excruciating pain 24/7 that felt like multiple bones were broken in my body, extraordinarily high levels of inflammation (10x higher than most with PMR), severe night sweats, fever, nausea, weight loss, headache, episodes of double vision,... The initial treatment, started 3 weeks later, of 20 mg/day of Prednisone was inadequate. After an emergency room visit on March 2, 2023, due to double vision, the ER doctors upped the dosage to 60 mg/mg. This was continued for about 5 weeks, after which weekly injections of Actemra (tocilizumab) were introduced and tapering of the Prednisone started.

The Actemra shots have been very effective with no relapses and my inflammation scores too low to measure.

I am now (10/7/23) down to 1 mg/day of Prednisone, and will discontinue in it another 2 week. The weekly shots of Actemra will probably continue for another year...