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← Return to COVID vaccines and neuropathy
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I can absolutely say that while I had COVID (had vaccines) I developed neuropathy with the horrible pains streaking up my legs and still have it and guess will always have it. What do any of you do when the pain is really terrible?
Tramadol just takes the edge off of the shooting pain; but, it still is there. So far I have tried the Boston Scientific SCS trial (no improvement) Saluda (no improvement) an epidural (no improvement) have any of you found ANYTHING that will help? Are you taking ie Pregabalin during the daytime also-if so how mg.?
Replies to "I can absolutely say that while I had COVID (had vaccines) I developed neuropathy with the..."
My nerve pain is much better now 2.5 years after the Pfizer vaccines. I'm able to control it at night using 5% Lidocaine patches available by prescription. I'm not sure these would have helped at the height of my injury, but it would be worth a try. Like you, my nerve pain could not be controlled with Tramadol. Out of desperation, I discovered the nerve pain and numbness in my feet and calves was worsened by sitting. I therefore avoided sitting completely for 3 months and had to take medical leave. If not for that, I believe I would eventually have been hospitalized. I believe the dorsal root ganglion neurons near my spine were also under autoimmune attack, which could explain the unusual intolerance for sitting. My peripheral neurologist did not disagree that this could be a possible explanation. I know it sounds weird, but you could try avoiding sitting to see if the nerve pain then becomes manageable.
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I 300 mg Gabapentin 3X a day and Cymbalta 60 mg 2X a day. I have nerve pain all over my entire body.
I was on Lyrica but the Gabapentin seems to be helping more. I just wish they could take out the nerves that are giving us so many problems. But that's impossible I'm afraid.
Good Luck to you.