So sorry for what you are going through. I am curious if the Dr has stated that there is no seizure involvement? My neurologist was convinced that I was having seizures. He put me in the hospital for testing to try to catch the seizure activity [had to lay still for 24 hrs and could not go to sleep]. He couold not "catch" it, but it did not dissuade him from the Dx of seizures, and he even put me on Gabapentin for it. There were mild incidences that directed him to this Dx, but I also had two major incidences that "convinced" him, even though nothing was caught on the testing. I took a bad fall and was down for 5 nights, plus I totaled my car because of "losing consciousness" for a short time, actually causing the accident. Seizures are a hard thing to diagnose, but also a hard thing to rule out, as I understand. When I have had my "seizure activity", I have no memory or recollection of what happened immediately prior to, or after, the "falls". Is this something you explerience? Don't misunderstand me, I am not trying to "diagnose" you. Just wondering.
P