← Return to Learn About NETs and monthly meetings

Discussion

Learn About NETs and monthly meetings

Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:30pm | Replies (96)

Comment receiving replies
@sophiarose

I started Massage PT to help with the pain I have from Lanreotide and Octreotide injections
Amazingly PT helped with my fatigue
I get off that table I feel like a million dollars
I am sure you know the whole food thing “small meals all day”
FYI the Dr gave me Ceron which actually made me worst don’t know if you are on that
This site is the best
There is always someone that has the same situation
I have learned one thing don’t over focus it makes things do much worst
I wish you well and hope you feel better soon
Good luck

Jump to this post


Replies to "I started Massage PT to help with the pain I have from Lanreotide and Octreotide injections..."

Thank you so much!!!! I actually have a PT apt on Monday and she does myofacial release and they have an infrared sauna (not sure if I should use this at this point as it can dehydrate you a bit). I took Pepto for a while, Imodium, prescription Lomotil, and I am now on Colestipol for bile acid diarrhea. I’m not sure it’s helpful yet. It’s very frustrating for sure but I know I will feel better eventually…I very impatient however and ten to get down about how bad I feel. I am working with a therapist from the cancer team to help with my emotions as well. Anyway, thank you again for reaching out and I hope you continue to do well!!! Happy Fall!