Thank you. I don't want to cause problems for the Dr, but I keep giving him chances and he doesn't come through. I would tell someone else to contact the Office of Patient Experience, but I don't know for myself. I keep thinking I probably made it worse when I spoke up to him about it. My initial disillusionment with him was when I contacted him thru the portal about a Rx that he had increased which affected my neurological body movement. I had been referred to him for this condition and seen him for a year and a half and his response was, "what body movement would that be?"! Then, he referred to it as "dizziness", which I explained to him for the umpteenth time that it is not dizziness that I feel, and referred to a Dx of BPPV, which he had never mentioned before to me, and which I know is not the Dx for this condition. I have had this before, a couple of times, and I know those symptoms. The final thing was a test result for a test he had ordered through Mayo, that came back as High. I checked on previous results that were that same result and higher, that Mayo Lab did not indicate as High. I contacted him and asked him if the reference range had changed for this test? He replied to me to contact the Rheumatologist he had referred me to at a previous time. I presented the same facts to the Rheumatologist, and he told me I would need to contact the Dr who ordered the test! I was so frustrated and angry that I made my voice heard to the Dr and then canceled all my upcoming appts with Mayo, vowing never to return, knowing now that was an overreaction. I have posted on Connect that I think so many problems with Drs today is that they are overburdoned with the number of patients, so how do I then "report him" if this is the case? I don't know.......

I tried giving feedback on very very bad experience with even setting up appointment. They never responded to e-mail and I don't recall ever reaching this line. The health care system is so broken and we who are sick are victims without any recourse. I live in city (major health care system) and wait to see endo is 6 months and we have no way of getting a biopsy or finding somone who knows about diabetic related autonomic failure. I just gave $$ to Foundation for Peripheral Neuropathy. Our national priorities are very bad. Our military budget is now as big as out domestic budget. No sentors w exceeption of a few challange. I call and write White House, senators, etc., but it doesn't make a dent. We need more federal dollars spent by NIH on reasech and treatment options. It's all left up to drug companies and what they can make largest profits on.

Ok, thanks to your suggestion, I just submitted dialogue to the Mayo Office of Patient Experience! I stated that I was not trying to get this Dr in trouble, but that the treatment I was getting is not acceptable. I told them about the two Drs that I found that I thought could help me and how their "self-referral" policy is failing patients. Especially since they are required to go back through their current Mayo Dr for a referral. I did tell them that I did submit a referral request on Sept 9, and that I am still waiting on a response. I also gave them details on the most recent failing performance by my Dr. I am not very hopeful that anything will come about from this, but we shall see. My Mayo experience has really been no different from the other experiences I have had with various other Drs, clinics and hospitals, and I reminded them that this is certainly not the kind of care that Mayo is currently advertising! I do have a GI appt with a PA on 10/19, so I did message him to remind me to ask for a referral to a PN specialist when I see him [because of my MCI, I may not remember]. I am not sure GI will want anything to do with this, but at least I am trying, right? Whatever......
P