← Return to Interested in hearing people's experiences with PRRT

Discussion
Comment receiving replies
@lu7

Hello! I just finished my 6th round of Lutetium LU-177 dotatate as part of the Compose trial. My primary was a PNET. I had a distal pancreatectomy and splenectomy in early 2021.
We found Mets to my liver in fall of 2022. Thirty to 40. I have scans next week so I will know more then, but Dr. Halfdanerson is very pleased, I think. So far there has been slight shrinkage in most of the marker tumors. It's only a couple millimeters but I'll take it. They haven't seen new tumors. The hope is that the therapeutic benefits will continue for some time. I will try to post an update next week after scans. Happy to answer any questions. My best to you!
Linda

Jump to this post


Replies to "Hello! I just finished my 6th round of Lutetium LU-177 dotatate as part of the Compose..."

@lu7
I see you have done the 6 th round of LU -177 dotatate. Has there been problem with your platelets counts running low? Will that stop further treatment or is there remedy that can be done?
My son has finished 2 rounds of PRRT, but his platelet count has gone from 135... to 75..