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Diagnosed with sarcoma? Let's share
Sarcoma | Last Active: 1 day ago | Replies (806)Comment receiving replies
I have been diagnosed with an echondroma (July 2023)by the radiologist who read my images but my oncologist said she felt it was actually a condrosarcoma and referred me to Mayo in Phoenix in July 2023. I just completed radiation for Lobular breast cancer that traveled to my lymphe nodes in May 2023 and I wonder if that could have turned it into cancer. My lab work has been what would be expected having gone through a lumpectomy and than 4 weeks of radiation (to breast only; did not radiate lymph nodes ??) but last Monday I had my labs drawn and about 5-6 of the items they test for were abnormal leading my oncologist to think I am leaning towards multiplemyloma. Have you had any blood work that was concerning to you oncologist? I am sorry to hear you are going through this. Chronic pain definitely effects your quality of life. Have they been able to help you with the pain? I have some pain in my rt femur where the tumor was found but as of yet it has been mild. The tumor is pretty big. 10cm x 2.2cm. How are you doing today? what treatments have they offered you? I am just wondering if you have been pleased with your treatment thus far. I'll say a prayer for you today.
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Are you currently being seen at Mayo? I was diagnosed in July also and was referred to Mayo which took a while to get a call and get things scheduled. It seems once I was scheduled there things have been moving along. I found out that Chondrosarcomas do not respond to Chemo OR Radiation so my only choice in this is surgery which is major! My first surgery will be on Nov 27th and they will cut 3 nerves. I will no longer have bladder, colon, or sexual functions. The 2nd surgery is when they will cut out a large part of my sacrum. Seeing as my sacrum supports my pelvis, I will no longer be able to do certain things or lift anything heavy. If I fracture the remainder of my sacrum there is nothing they can do for me. After surgery I will have to learn to deal with a colostomy bag and also learn to cath myself. I won't be able to sit for 4-6 weeks. I can only be on my right side or standing. UGH...I am way too young to be dealing with all of this. (I am 55) It sounds like chondrosarcoma may be a genetic thing so I enrolled in the Mayo research. I have 9 appointments coming up before my surgery. I think they are looking for another cancer in my body. I get really nervous when they want more scans but at least they are being very thorough. I guess I just have to trust what they tell me and do what they tell me to do. I can't wait for all of this to be over wih although I'm sure I will have to deal with some of it the rest of my life and pray that cancer does not show up anywhere else down the road. I am so sorry to hear of everything you are going through. Lots of stress having to wait things out and wonder if they are doing the right things. I do trust the Mayo over any other clinic or hospital though. My doctors have been awesome!!! Prayers and hugs to you.