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Diagnosed with Ameloblastoma

Head & Neck Cancer | Last Active: Oct 28 6:03pm | Replies (227)

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@anniecl

Where did you choose to have your surgery? My son lives in Orlando, Florida and we are not finding surgeons or centers experienced with this. Some are willing to operate, but with ameloblastoma I don't think we need to be someone's first case. We are willing to travel if needed--and assume we will need to. Just trying to get options for him. Thanks.

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Replies to "Where did you choose to have your surgery? My son lives in Orlando, Florida and we..."

I’m so sorry but I live in London and had my surgery in central London! Is there any way to research specialists, hopefully some of the other guys on here can help you to find a surgeon who can operate and I wish you and your son nothing but a smooth journey!

I can recommend two surgeons in Central Texas who have dealt with ameloblastomas - I have no information on treatment in Florida.

My original surgeon still practices in Temple, TX at the huge Baylor, Scott and White complex. He did want to do the more radical surgery on my first round (~2007) - but I opted for more conservative treatment.

My current oral surgeon in Austin did a fabulous job with the biopsy, and really knows ameloblastoma surgery. If I were going forward with surgery, I would be quite confident in him.

Let me know if you would like specifics.

I had surgery July ‘22 and was scheduled for Houston but the doctor had his feeling hurt by asking a question so I went to Mayo Clinic Rochester and they were excellent surgeons. I couldn’t be happier. Good luck