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mch (Marycarol) (@mch)

Arikayce Approval

MAC & Bronchiectasis | Last Active: Dec 11, 2023 | Replies (31)

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@tconz

I have not experienced any hemoptysis, hearing or kidney issues. I am also on Azithromycin, Ethambutol, Rifampin, sodium chloride and levalbuterol daily and my ID checks my liver and kidney function every 3 months. I also get my eyes and hearing checked every 3 months as well. I have been on the Big 3 for 9 months and tested negative 8 months ago for MAC and have continued to do so. I started Amikacin 4 months ago because the cavity in my left lung had not changed. I go back to NJH in November and I am hoping my CT scan looks better. My doctors at NJH did not want me to use the inhaled Amikacin daily ONLY 3 times per week. It is harsh on the throat and vocal cords if used much more. I dilute mine with sodium chloride to make it more tolerable and less side effects. I hope you can tolerate the Amikacin because I hear people have good results.

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Replies to "I have not experienced any hemoptysis, hearing or kidney issues. I am also on Azithromycin, Ethambutol,..."

I am starting on Amikacin next week. When you dilute Amikacin with sodium chloride, which sodium chloride do you use (0.9 or 7%)? What is the approximate ratio? Thank you.