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Learn About NETs and monthly meetings

Neuroendocrine Tumors (NETs) | Last Active: Oct 31 7:30pm | Replies (96)

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@bluebelle

I have stage 3 NET cancer and had a large tumor in my small intestine removed, a small one near that are, and one in a lymph node near there as well. I also had 10 additional lymph nodes removed with cancer cells. My PET scan is the 1st week of November with a follow up/ discussion of treatment. In the meantime I continue to lose weight, feel awful, chronic diarrhea, malnutrition…etc. How do I get through this healing stage and even begin my treatments? I’m really worried bc I’m so weak and I know that with treatment my weakness and fatigue may get worse. I just want to feel better and live somewhat of a normal life during all this. I’m pretty much tied to the house and near the bathroom…any advice would be greatly appreciated!!!

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Replies to "I have stage 3 NET cancer and had a large tumor in my small intestine removed,..."

I started Massage PT to help with the pain I have from Lanreotide and Octreotide injections
Amazingly PT helped with my fatigue
I get off that table I feel like a million dollars
I am sure you know the whole food thing “small meals all day”
FYI the Dr gave me Ceron which actually made me worst don’t know if you are on that
This site is the best
There is always someone that has the same situation
I have learned one thing don’t over focus it makes things do much worst
I wish you well and hope you feel better soon
Good luck