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DiscussionInterested in hearing people's experiences with PRRT
Neuroendocrine Tumors (NETs) | Last Active: Oct 16, 2023 | Replies (138)Comment receiving replies
Replies to "Side effects. Response to drug as to stopping the spread and enlarging."
Our case has moved from diagnosis of mass on pancreas with spread to liver. Kim finished 9 months of chemo which was very successful reducing size of tumors in both areas by 80%. We continued the Lanreotide until recently, switching to Octrecide. We have completed 1 of 4 PRRT treatments. She has generally tolerated the first treatment. Our medical team thinking was to do the PRRT now while the cancer is at its lowest state to get it at to a stage that we only have to monitor it and and as growth occurs again, the best course of treatment will be done. We also are going through the process of getting approved for a Liver Transplant as a option for now, so if that is the best course of action we are all set. The reasoning for transplant option is if the cancer is only in the liver,, the opportunity to potentially remove all the cancer will be considered. Either way our long term prognosis is good as our team hopes to keep moving this cancer down the street for decades. Hope that helps you, we all got this! Let me know how we can help further.